Coming home disclaimer | links | news |  | search go for patients and families for healthcare professionals drugs and porphyria about epnet   - introduction  to porphyria - acute porphyrias - congenital  erythropoietic porphyria - erythropoietic  protoporphyria - porphyria cutanea  tarda - patient support   groups - specialist centres - the porphyrias - laboratory diagnosis - investigating the family - treatment - pain management - specialist centres - congress abstracts - background   information - how to use the   information - selecting a drug - common prescribing   problems - what is epnet? About epi news   print contents epnet 2011 report executive summary rare disease day 2012 news epnet 2011 report executive summary the porphyrias are rare genetic diseases that can be chronically debilitating and life threatening, particularly affecting adults with young families who are at the start of their working life. Understanding and knowledge among general clinicians is low and there is a risk that without expert services and advice in all european countries the conditions will be under-diagnosed and inadequately treated. Porphyrias are an excellent example of a group of disorders where the limited number of patients and scarcity of relevant knowledge and expertise single them out as a distinctive domain of very high european added value. The european porphyria network (epnet) ensures that scarce relevant knowledge is shared and resources combined.  click here >> rare disease day 2012 rare disease day is an annual, awareness-raising event co-ordinated by eurordis at the international level and the national alliances of patient organisations at the national level.  click here >>© copyrighted 2003-2005 deybach. All rights of reproduction in any form reserved. Powered by cyim. Re reacting to the medication? buy generic viagra on line generic viagra without a doctor 100 mg generic viagra buy viagra on line cheapest viagra canada buy cheap viagra online viagra tablets order online cheap viagra uk delivery sale viagra order generic viagra online no prescription Symptoms of an incipient acute attack if you develop significant abdominal pain, that is, deep, gnawing pain and discomfort in your abdomen, you need to contact your doctor. This may be the first sig.  

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